By Regina Holliday – This is the sixth year of the Walking Gallery of Healthcare. We now number over 400 members walking around the world with patient story paintings on our backs. We are attending medical conferences where often there isn’t a patient speaker on the dais or in the audience. We are providing a patient voice, and by doing so, are changing the conversation.
By Richard Pazdur MD – I am honored to be selected by Commissioner Califf as the acting director of FDA’s new Oncology Center of Excellence (OCE) in support of the Vice President’s National Cancer Moonshot Initiative.
By Karen DeSalvo & Jocelyn Samuels – The Office for Civil Rights released a HIPAA fact sheet earlier this year reinforcing patients’ right to access their health information and clarifying, among other things, that patients may be charged only limited fees for copies of their health information.
By John Halamka MD – When my father died 3 years ago, my comments at his funeral noted that the greatest aspiration any of us can have is to make a difference in the world. My father’s life made a difference. I’m always self critical and analyzing my own life. I moved to Boston 20 years ago this month.
By Warren Kibbe, PhD – Health data enthusiasts of all stripes arrived in Washington, DC, for an annual event known as Health Datapalooza. Incredibly smart participants from government, academia, companies, startups, and patient groups meet to share ideas and brainstorm about how to share and unleash health information to improve health outcomes for all.
By Lucia Savage & Deven McGraw – For many years now, health IT developers, consumer advocates, and representatives from U.S and international governments have converged on Washington D.C. each spring for Health Datapalooza. New this year is a Privacy and Security Day.
By Matt Fisher – Dropping HIPAA Insights: Audits Will Not Result In Fines – The first Healthcare De Jure show was recorded on Tuesday, April 26th with Deven McGraw, Deputy Director for Health Information Privacy at the HHS Office for Civil Rights, as the first guest. The discussion covered many aspects of HIPAA, with a particular focus on the Privacy Rule and the newly started second round of audits.
By Kathleen “Cook” Uhl MD – At FDA’s Office of Generic Drugs (OGD) in the Center for Drug Evaluation and Research, 2015 was an important year. It was our first full year of operation after vastly expanding our office’s scope and structure
By Dr. Cara James – Each April, in recognition of National Minority Health Month, we commemorate past achievements, acknowledge current efforts, and outline our continued journey towards health equity and equality for all. Fifty years ago, our journey included stops in …
By Jenny Gold – Tucked in remarks the president made on March 29th, the opioid epidemic was his announcement of a new task force on mental health parity aimed at ensuring that people with mental illnesses and substance abuse problems don’t face discrimination in the health care system.
By Darrell Hurt PhD – Because I lived overseas in 1986, I was not among the millions of school children who witnessed the Challenger space shuttle disaster on live TV. But President Reagan’s use of John G. Magee’s poetry to describe how the seven NASA astronauts…
By Taunya English – To hear a patient’s heart, doctors used to just put an ear up to a patient’s chest and listen. Then, in 1816, things changed. Lore has it that 35-year-old Paris physician Rene Laennec was caring for a young woman who was apparently plump, with a bad heart and large breasts.
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